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Longer titles found: Rhode Island Patient Advocacy Coalition (view)

searching for Patient advocacy 167 found (260 total)

National Nurses United (601 words) [view diff] exact match in snippet view article find links to article

policy positions include the enactment of safe nurse-to-patient ratios, patient advocacy rights at the Executive and State level, and legislation for single-payer

2012 Massachusetts Question 3 (1,390 words) [view diff] case mismatch in snippet view article find links to article

initiative—backed by the American Civil Liberties Union, the Massachusetts Patient Advocacy Alliance, and the Committee for Compassionate Medicine—was filed with

Rare Disease Day (1,103 words) [view diff] exact match in snippet view article find links to article

National Organization for Rare Disorders mobilized 200 rare disease patient advocacy organizations in the United States while organizations in China, Australia

Baseline Study (874 words) [view diff] exact match in snippet view article find links to article

including science, medicine, user experience and design, engineering and patient advocacy. The project is not the first one to aim to collect data on many individuals

Arturo Porzecanski (1,063 words) [view diff] no match in snippet view article find links to article

Arturo C. Porzecanski is a Uruguayan-born economist who has spent his entire adult life in the United States. Born (November 2, 1949) and raised in Montevideo

American Society for Aesthetic Plastic Surgery (313 words) [view diff] exact match in snippet view article find links to article

1967, their mission includes medical education, public education and patient advocacy. ASAPS sponsors scientific conferences throughout the year and offers

Community Oncology Alliance (170 words) [view diff] exact match in snippet view article find links to article

a patient centered medical home tailored to oncology practices, a patient advocacy network, an oncology pharmacy manager association, and practice administrators

PharmedOut (1,273 words) [view diff] exact match in snippet view article find links to article

education and industry support of patient advocacy groups, and has compiled a list of pharma-free patient advocacy groups. In its first 10 years, PharmedOUT

Evotec (1,301 words) [view diff] exact match in snippet view article find links to article

pharmaceutical and biotechnology companies, academic institutions, patient advocacy groups, and venture capitalists. As of 31 December 2021 Evotec had

Hatzalah (3,873 words) [view diff] no match in snippet view article find links to article

Hatzalah (/hətˈsʌlə/; Hebrew: הַצָּלָה, lit. 'rescue, relief') is the title used by many Jewish volunteer emergency medical service (EMS) organizations

History of intersex surgery (6,050 words) [view diff] exact match in snippet view article find links to article

a combination of factors. One of the major factors was the rise of patient advocacy groups that expressed dissatisfaction with several aspects of their

Asthma and Allergy Foundation of America (664 words) [view diff] exact match in snippet view article find links to article

community programs and services. AAFA is the only asthma and allergy patient advocacy group that is certified to meet the standards of excellence set by

Medical Women's Association of Nigeria (460 words) [view diff] exact match in snippet view article find links to article

The group's mission is to improve women's health in Nigeria through patient advocacy, including offering community health screening programs. MWAN is affiliated

Rare Diseases Clinical Research Network (906 words) [view diff] exact match in snippet view article find links to article

physician scientists and their multidisciplinary teams work together with patient advocacy groups to study more than 200 rare diseases at sites across the nation

Vertex Pharmaceuticals (3,315 words) [view diff] exact match in snippet view article find links to article

biotech leaders hosted by Life Sciences Foundation on the topic of patient advocacy in the biotech industry. While Brooks, who has cystic fibrosis, expressed

Vertex Pharmaceuticals (3,315 words) [view diff] exact match in snippet view article find links to article

biotech leaders hosted by Life Sciences Foundation on the topic of patient advocacy in the biotech industry. While Brooks, who has cystic fibrosis, expressed

Kookal Ramunni Krishnan (579 words) [view diff] no match in snippet view article find links to article

Kookal Ramunni Krishnan (KR Krishnan) (1929–28 December 1999) born in Kerala, was an Indian physician. He was the former director of Southport Regional

Microphthalmia, syndromic 12 (MCOPS12) (868 words) [view diff] no match in snippet view article

Microphthalmia, syndromic 12 (MCOPS12) is an ultra-rare and complex neurological disease. It is caused by a single-point missense mutation in the retinoic

Society for Immunotherapy of Cancer (1,064 words) [view diff] exact match in snippet view article find links to article

and commitment to collaborations with like-minded organizations and patient advocacy groups, SITC brings together all aspects of the cancer immunology and

Association of Medical Microbiology and Infectious Disease Canada (1,113 words) [view diff] exact match in snippet view article find links to article

through our involvement in education, research, clinical practice and patient advocacy. Position papers and guidelines in support of this mission are published

Veronica Beechey (620 words) [view diff] no match in snippet view article find links to article

Veronica Beechey (1946–14 January 2021) was a British feminist sociologist and patient's rights advocate. Beechey was born in Hastings and grew up in Battle

Medtrade (909 words) [view diff] exact match in snippet view article find links to article

within Medtrade include fundraising receptions from organizations for patient advocacy. Medtrade's average exhibit hall size in 2013 was 145,000 square feet

Howard Lotsof (568 words) [view diff] exact match in snippet view article find links to article

further research of ibogaine and had an interest in chemical dependence patient advocacy including authoring the Ibogaine Patients' Bill of Rights. The systematic

Leana Wen (4,468 words) [view diff] no match in snippet view article find links to article

Leana Sheryle Wen (Chinese: 温麟衍; born Wen Linyan; January 27, 1983) is an American physician, author, professor, speaker, consultant, newspaper columnist

Scoliosis Research Society (772 words) [view diff] exact match in snippet view article find links to article

deformity throughout life by patient care, education, research and patient advocacy." It was founded in 1966 with 37 members, and now has grown to include

Patients for Affordable Drugs Now (395 words) [view diff] exact match in snippet view article find links to article

Patients For Affordable Drugs Now is a patient advocacy and lobbying organisation based in Washington, D.C., founded by David Mitchell who suffers from

Thomas Schuler (1,424 words) [view diff] exact match in snippet view article find links to article

Foundation, a national non-profit focused on education, research and patient advocacy of neck and back health. Thomas Schuler was born in 1960. He became

National Bleeding Disorders Foundation (830 words) [view diff] exact match in snippet view article find links to article

The National Bleeding Disorders Foundation (NBDF) is a United States patient advocacy organization for the care and treatment of inheritable blood and bleeding

Taxonomy of the burden of treatment (3,745 words) [view diff] exact match in snippet view article find links to article

questions, and want to be a part of the conversation. The shift towards patient advocacy and interpersonal collaboration allows shared trust, respect, and healthcare

Alosetron (1,502 words) [view diff] exact match in snippet view article find links to article

of severe constipation, 143 admissions to hospital, and 7 deaths. Patient advocacy groups, most notably the Lotronex Action Group and the International

Painless Parker (611 words) [view diff] exact match in snippet view article find links to article

American Dental Association. However, "Much of what he championed—patient advocacy, increased access to dental care, and advertising—has come to pass

Your Health Now (143 words) [view diff] exact match in snippet view article find links to article

and reviewed by an independent board of medical professionals and patient advocacy organizations. In 2006 the magazine started a Spanish version. "Merck

Myeloma Canada (253 words) [view diff] exact match in snippet view article find links to article

relatively unknown disease, and serves as an international model for patient advocacy, community engagement and research. As a patient-focused organization

Jeanne Loring (3,289 words) [view diff] exact match in snippet view article find links to article

Parkinson's disease. The project was launched in 2012 by funding by the patient advocacy group Summit For Stem Cell. The goal of the project is to produce autologous

Malpractice (449 words) [view diff] exact match in snippet view article find links to article

Retrieved 7 December 2017. Kamaker, Dorothy (September 26, 2015). "Patient advocacy services ensure optimum health outcomes". smh.com.au. The Sydney Morning

Food Allergy Research & Education (1,664 words) [view diff] exact match in snippet view article find links to article

diagnostics. FARE formed in 2012 through the merger of two food allergy patient advocacy organizations: the Food Allergy & Anaphylaxis Network (FAAN), a nonprofit

Astroturfing (6,544 words) [view diff] exact match in snippet view article find links to article

letters" sent to his office to promote insurance industry interests. Patient advocacy groups funded by biopharmaceutical companies are common. In 1997, Schering

TranSMART (1,021 words) [view diff] exact match in snippet view article find links to article

evaluated by numerous pharmaceutical companies, not-for-profits and patient advocacy groups, academics, governmental organisations and service providers

Shekinah Elmore (218 words) [view diff] exact match in snippet view article find links to article

self-described "cancer person", she is known for her work in cancer patient advocacy among her fellow physicians and for her public speaking and writing

Cancer Support Community (1,850 words) [view diff] exact match in snippet view article find links to article

psychosocial, behavioral and survivorship research. CSC furthers its focus on patient advocacy through the Cancer Policy Institute, informing public policy in Washington

Rare Disease Caucus (341 words) [view diff] exact match in snippet view article find links to article

specialized and uncommon health issues and diseases, and to promote patient advocacy. The caucus works closely with the Rare Disease Legislative Advocates

Santiago Schnell (2,030 words) [view diff] exact match in snippet view article find links to article

program in the country focusing on rare disease patient advocacy. A few months later, Notre Dame Patient Advocacy Initiative receives founding gift from Horizon

Jesse Stout (490 words) [view diff] case mismatch in snippet view article find links to article

with Children from 2013-2015. He was a founder of the Rhode Island Patient Advocacy Coalition (RIPAC) which successfully lobbied the state of Rhode Island

Medical case management (215 words) [view diff] exact match in snippet view article find links to article

Disease management (health) Case management (US healthcare system) "Patient advocacy services ensure optimum health outcomes". 21 September 2015. Retrieved

Brain Tumor Social Media (1,401 words) [view diff] exact match in snippet view article find links to article

was most commonly used by brain tumor patients (33.13%), along with patient advocacy organizations (7.01%), care partners (4.63%), and clinicians (3.63%)

Ambulatory care nursing (877 words) [view diff] exact match in snippet view article find links to article

needs, performing procedures, conducting health education, promoting patient advocacy, coordinating nursing and other health services, assisting the patient

Rebecca Dresser (462 words) [view diff] case mismatch in snippet view article find links to article

ISBN 9780195119084. Dresser, Rebecca (2001). When Science Offers Salvation: Patient Advocacy and Research Ethics. Oxford University Press. ISBN 9780195143133. Dresser

Rare Diseases Clinical Research Network Contact Registry (635 words) [view diff] exact match in snippet view article find links to article

It allows patients and others to connect with research teams and patient advocacy groups focused on particular diseases. data about individuals who are

Van De Berghe Dequeker syndrome (812 words) [view diff] exact match in snippet view article find links to article

For those affected by the syndrome, it may be helpful to visit a patient advocacy and support organization, which can be easily accessed online. These

Duane J. Roth (518 words) [view diff] exact match in snippet view article find links to article

obituary for Roth notes his efforts both on the CIRM board and for patient advocacy via the Independent Citizens Oversight Committee (ICOC). "Duane Roth"

Chris Ward (Canadian politician) (493 words) [view diff] case mismatch in snippet view article

original on March 22, 2014. Retrieved 2014-03-02. "Past Meetings". Patient Advocacy Leaders Summit. Retrieved 2011-07-10. Hooper, Michael (22 February

Kabuki syndrome (3,368 words) [view diff] exact match in snippet view article find links to article

project called Kabuki Count was launched by a global collection of patient advocacy groups (led by the Kabuki Syndrome Foundation) as a global census to

Patient recruitment (2,971 words) [view diff] exact match in snippet view article find links to article

the clinical research field, such as pharmaceutical companies and patient advocacy groups, have proposed and implemented various strategies and initiatives

Health marketing (1,457 words) [view diff] exact match in snippet view article find links to article

efforts by healthcare providers, research institutions, nonprofits, and patient advocacy groups to influence public health policy and resource allocation. These

Data monitoring committee (679 words) [view diff] exact match in snippet view article find links to article

major suspected safety effects. Ethicists or representatives from a patient advocacy group may be included, particularly for research involving vulnerable

Notre Dame College of Science (1,043 words) [view diff] case mismatch in snippet view article find links to article

Sustainability (minor) Compassionate Care in Medicine (minor) Science and Patient Advocacy (minor) The College of Science has facilities in Jordan Hall, Galvin

Pemphigus vulgaris (1,941 words) [view diff] exact match in snippet view article find links to article

by the disease, for others men and women are equally affected. The patient advocacy organisation NORD sees people of many different cultures and racial

National Organization for Rare Disorders (863 words) [view diff] exact match in snippet view article find links to article

Pharmaceuticals Zealand Pharma NORD is engaged in partnerships with a number of patient advocacy groups and industry organizations. Partners include: Alliance for a

Ehlers-Danlos Society (492 words) [view diff] exact match in snippet view article find links to article

International patient advocacy and support organization

Elizabeth Ward (British campaigner) (1,588 words) [view diff] no match in snippet view article

Elizabeth Despard Ward MBE (née Wynd; 11 October 1926 – 20 July 2020) was a British healthcare campaigner known for pioneering organ donor cards and founding

Refsum disease (1,342 words) [view diff] case mismatch in snippet view article find links to article

the hindgut fermentation of plant materials. Global DARE Foundation (Patient Advocacy Group for Refsum Disease) The Myelin Project List of cutaneous conditions

Inspire (company) (1,592 words) [view diff] exact match in snippet view article

Shue and David Marshall. Inspire partners with multiple nonprofit patient advocacy organizations, such as the Bladder Cancer Advocacy Network, National

Ezekiel Emanuel (7,208 words) [view diff] no match in snippet view article find links to article

article Conflict of Interest for Patient-Advocacy Organizations Emanuel found that financial support of patient-advocacy organizations from drug, device

Patricia Richardson (1,202 words) [view diff] exact match in snippet view article find links to article

Board of Directors and is the National Spokesperson for "Cure PSP", a patient advocacy and research organization for progressive supranuclear palsy, corticobasal

Society of Nuclear Medicine and Molecular Imaging (546 words) [view diff] case mismatch in snippet view article find links to article

referring physicians about nuclear medicine and molecular imaging. A Patient Advocacy Advisory Board was created to guide the society's outreach efforts

University of Wisconsin Law School (1,480 words) [view diff] exact match in snippet view article find links to article

Finally, the Center for Patient Partnerships is an interdisciplinary patient advocacy clinical housed in the law school in which students of law, medicine

York Region Paramedic Services (739 words) [view diff] case mismatch in snippet view article find links to article

Professional Standards - Patient inquiries, health record inquiries Patient Advocacy Unit in the Office of the Chief Paramedicine in Canada List of EMS

Pancreatic Cancer Action Network (1,913 words) [view diff] exact match in snippet view article find links to article

cause. Nearly $1.3 million was raised in 2017. In 2013, international patient advocacy organizations focused on pancreatic cancer gathered to consider collaborating

Ann Tilton (857 words) [view diff] exact match in snippet view article find links to article

with Developmental Disabilities. She has served as president of the patient advocacy group Child Neurology Foundation. Ann Henderson was born in Kingsville

Belz (Hasidic dynasty) (1,952 words) [view diff] no match in snippet view article

a variety of self-help organizations, including one of the largest patient-advocacy organizations of its kind, a free medical counseling center, and an

Everyday Health (1,408 words) [view diff] exact match in snippet view article find links to article

conference HLTH in 2019. In 2020, Everyday Health Group acquired the patient advocacy and community site Migraine Again, for people living with migraines

Rare Diseases Act of 2002 (584 words) [view diff] exact match in snippet view article find links to article

which includes NIH staff, academic investigators and members of 98 patient advocacy groups. There are 91 studies underway. For fiscal year 2014, the NIH

Matthias Lanzinger (840 words) [view diff] exact match in snippet view article find links to article

support Lanzinger both personally and publicly. In 2010, the Norwegian patient advocacy found that Lanzinger had not received adequate treatment for his injuries

Linda MacDonald Glenn (422 words) [view diff] exact match in snippet view article find links to article

Glenn consulted and practiced as a trial attorney with an emphasis in patient advocacy, bioethical and biotechnology issues, end of life decision-making,

Ellen Cohen (640 words) [view diff] case mismatch in snippet view article find links to article

Association Against Sexual Assault; Texas Academy of Family Physicians 2008 Patient Advocacy Award; The Shattered Glass Award from Harris County Women's Political

Glycogen storage disease (5,883 words) [view diff] exact match in snippet view article find links to article

international patient registry for all rare diseases. They work with patient advocacy groups, including IamGSD, individuals and researchers. CORD - Canadian

Carenet Health (416 words) [view diff] exact match in snippet view article find links to article

care management programs and consumer engagement solutions such as patient advocacy, care navigation, nurse advice line, virtual doctor consultations,

Charles LeMaistre (576 words) [view diff] exact match in snippet view article find links to article

University of Texas MD Anderson Cancer Center, and had an active voluntary patient advocacy with his wife Andreae. He received many awards, among them, distinguished

Harrow Health (1,377 words) [view diff] exact match in snippet view article find links to article

pharmacy field since 1999. Baum has been an advocate for drug pricing and patient advocacy, debating former US congressman James Greenwood on this issue at the

Bernie Banton (829 words) [view diff] exact match in snippet view article find links to article

organisation devoted to asbestos awareness and education, support and patient advocacy on behalf of asbestos-related disease sufferers, their carers and loved

Health care (4,422 words) [view diff] exact match in snippet view article find links to article

PMC 6887808. PMID 31832491. Dorothy Kamaker (21 September 2015). "Patient advocacy services ensure optimum health outcomes". Archived from the original

Abby House (589 words) [view diff] exact match in snippet view article find links to article

with her cane and pipe, bringing supplies, providing nursing care and patient advocacy for wounded men. Through her work she came to know General Robert E

Kerry Pawluski (111 words) [view diff] case mismatch in snippet view article find links to article

Kerry Pawluski Citizenship Canadian Known for Patient Advocacy Scientific career Fields Doctor of Medicine Aviation Institutions Blatchford Field Medical

Friends of Cancer Research (496 words) [view diff] exact match in snippet view article find links to article

health organizations, academic research centers, private companies, and patient advocacy groups. In 2011 and 2012, Friends of Cancer Research led the development

Juan Hinojosa (1,481 words) [view diff] case mismatch in snippet view article find links to article

Coalition of Texans with Disabilities, and in 2007, he received the Patient Advocacy Award from the Texas Academy of Family Physicians. He also received

Robert Biscup (629 words) [view diff] exact match in snippet view article find links to article

Academy of Orthopaedics, Biscup has won several awards, including the patient advocacy award from the American Academy of Pain Management; the Outstanding

Achondroplasia (4,577 words) [view diff] exact match in snippet view article find links to article

advocacy groups at the time of diagnosis can improve outcomes. Several patient advocacy groups exist to support people with achondroplasia and their families

Drew Pinsky (4,164 words) [view diff] exact match in snippet view article find links to article

meetings, writings and multimedia activities in conjunction with the patient advocacy group the National Depressive and Manic Depressive Association (NDMDA)

Janet Carroll (929 words) [view diff] case mismatch in snippet view article find links to article

she was the featured performer at the Porrath Foundation for Cancer Patient Advocacy Event tribute to film star Rhonda Fleming. After twelve years of formal

Patrick Schöffski (559 words) [view diff] exact match in snippet view article find links to article

(Germany), alternates between Leuven and Essen, and is supported by patient advocacy groups. Schöffski's main clinical interest is the treatment of solid

Patrick J. Kennedy (3,347 words) [view diff] case mismatch in snippet view article find links to article

Prevention Humanitarian Award, the American Psychiatric Association Patient Advocacy Award, the New York Academy of Science Breaking the Chains of Stigma

Jeff Aronin (854 words) [view diff] exact match in snippet view article find links to article

Aronin and his wife Lisa, thru the Aronin Family Foundation, support patient advocacy and research at organizations such as the American Porphyria Foundation

Lafora disease (2,694 words) [view diff] exact match in snippet view article find links to article

Gerber family connected with others affected by Lafora, they formed a patient advocacy organization in September 2009. Chelsea’s Hope Lafora Children Research

Gastrointestinal stromal tumor (4,411 words) [view diff] case mismatch in snippet view article find links to article

Patients EuroNet) - European Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups GIST Support International Life Raft Group International GIST

Health education (5,477 words) [view diff] exact match in snippet view article find links to article

could improve it through various lifestyle changes. In the 1980s, patient advocacy groups drew attention to the issue of patients' rights such as the

Natasha Gajewski (1,233 words) [view diff] case mismatch in snippet view article find links to article

the Clinic". Flip the Clinic. Retrieved December 29, 2017. "Taking Patient Advocacy to a Whole New Level". Health Management Technology Magazine. September

Lorraine Rothman (956 words) [view diff] exact match in snippet view article find links to article

tests that were taught at the clinic, there was an outreach for a patient advocacy program. Through it, patients could receive outpatient suction abortions

Toni Hoffman (955 words) [view diff] exact match in snippet view article find links to article

Master's degree in bio-ethics [citation needed] Occupation Nurse Employer Queensland Health Known for Exposing co-worker's malpractice, and patient advocacy

Chronic Lyme disease (4,668 words) [view diff] exact match in snippet view article find links to article

disease, had been harassed, stalked, and threatened by patients and patient advocacy groups angry at his refusal to substantiate their diagnoses of "chronic"

Irish Nurses and Midwives Organisation (2,313 words) [view diff] exact match in snippet view article find links to article

of 2017. The INMO attempted to mobilise public opinion behind its patient advocacy drive, and in conjunction with the Irish Patients Association Cystic

National Institutes of Health (6,175 words) [view diff] exact match in snippet view article find links to article

their interests are being represented, and individuals have formed patient advocacy groups to represent their own interests. Important stakeholders of

Jehangir Mehta (855 words) [view diff] exact match in snippet view article find links to article

Graffiti Earth in 2016. In 2013, Jehangir partnered with the non-profit patient advocacy organization Beyond Celiac (then known as the National Foundation for

National Coalition for Cancer Survivorship (891 words) [view diff] exact match in snippet view article find links to article

self-learning audio program, developed through collaboration with patient advocacy organizations and health care and social work professionals to help

Assisted living (4,303 words) [view diff] exact match in snippet view article find links to article

S2CID 85446299. "Agency seeks ombudsmen for nursing home, assisted living patient advocacy." Victoria Advocate [Victoria, TX], 9 Oct. 2010. Gale In Context: Opposing

American Sexual Health Association (1,943 words) [view diff] no match in snippet view article find links to article

the latest in herpes information, research, treatment, testing and patient-advocacy.[citation needed] HPV and Cervical Cancer Prevention Resource Center

Expanded access (2,650 words) [view diff] exact match in snippet view article find links to article

names: authors list (link) "Saved Josh: The gears of a successful patient advocacy campaign (Case study, by Elena Gerasimov) | Kids v Cancer". www.kidsvcancer

Center of expertise for rare diseases (538 words) [view diff] exact match in snippet view article find links to article

panel also stressed the importance of centers working closely with patient advocacy groups. Similar needs were identified in Europe in December 1993, when

Prescription Drug User Fee Act (3,146 words) [view diff] exact match in snippet view article find links to article

and tried to facilitate better communication between drug makers and patient advocacy groups. Congress expanded the scope of the legislation to include the

Michael Rosen (4,893 words) [view diff] exact match in snippet view article find links to article

with RCN President Dr Denise Chaffer citing Rosen's lived experience, patient advocacy, and ongoing COVID-19 public awareness work as contributory factors

NGLY1 deficiency (912 words) [view diff] exact match in snippet view article find links to article

confirmed NGLY1 deficiency have been reported in the medical literature. Patient advocacy groups have reported approximately 100 patients have been identified

National Alliance on Mental Illness (4,057 words) [view diff] exact match in snippet view article find links to article

sent letters to NAMI and about a dozen other influential disease and patient advocacy organizations asking about their ties to drug and device makers. The

Bernie Banton Foundation (429 words) [view diff] exact match in snippet view article find links to article

30 June 2020 Purpose Asbestos awareness and education, support and patient advocacy on behalf of asbestos related disease sufferers, their carers and loved

American Association of Neuromuscular & Electrodiagnostic Medicine (1,221 words) [view diff] exact match in snippet view article find links to article

association also works closely with several other medical societies and patient advocacy groups to ensure that neuromuscular patients have adequate access to

ALK positive lung cancer (1,554 words) [view diff] exact match in snippet view article find links to article

fusion had a response rate to crizotinib of up to 35%. According to patient advocacy group ALK Positive, a study in December 2018 found that the median

Market access (3,592 words) [view diff] exact match in snippet view article find links to article

humanistic interests. For example, parents, nutrition companies, and patient advocacy groups may engage lobbying firms to ensure legislators mandate insurance

Peter DeMarco (1,615 words) [view diff] exact match in snippet view article find links to article

the origin of an infection. 250 of DeMarco's patients organized a patient advocacy group called S.O.S. (Save Our Shots) and filed suit to restore his

Health insurance (10,800 words) [view diff] exact match in snippet view article find links to article

Economic capital Health administration Health Advocate (a US-based patient advocacy company) Health system – cross-national comparisons Health care reform

Bevacizumab (7,144 words) [view diff] exact match in snippet view article find links to article

recommendation of the panel of advisers. This decision was lauded by patient advocacy groups and some oncologists. Other oncologists felt that granting approval

Yvonne Cryns (1,032 words) [view diff] exact match in snippet view article find links to article

of health ... counseling, patient education, health education, and patient advocacy.” The court also found that Cryns was practicing nursing or midwifery

Beckstrand Cancer Foundation (1,079 words) [view diff] exact match in snippet view article find links to article

a licensed social worker. In addition to financial assistance and patient advocacy, many applicants receive supportive counseling and practical help that

Stephanie Arnold (author) (740 words) [view diff] exact match in snippet view article

of Today’s Chicago Woman’s 100 Women of Inspiration, and speaks on patient advocacy to organizations like The American Society of Anesthesiologist and

Hepatitis C (11,769 words) [view diff] exact match in snippet view article find links to article

pharmaceutical industry established a nationwide network of "Astro-Turf" patient advocacy groups to raise awareness (and fear) of the disease. Hepatitis C was

SYNGAP1-related intellectual disability (1,899 words) [view diff] exact match in snippet view article find links to article

expected to be affected worldwide. The SynGAP Research Fund, a US patient advocacy group, reviewed all the studies that support these estimates. SRF pointed

Allen Steere (3,141 words) [view diff] exact match in snippet view article find links to article

face of some elements of mainstream medical opinion, some doctors and patient advocacy groups claim that Lyme disease can develop into a chronic disease requiring

Aducanumab (4,868 words) [view diff] exact match in snippet view article find links to article

whether it could actually slow Alzheimer's patients' mental decline." Patient advocacy groups had lobbied heavily for the approval of the medication for a

Childhood cancer (5,812 words) [view diff] exact match in snippet view article find links to article

access to care for childhood cancers, focusing on patient support and patient advocacy. According to estimates by experts in the field of pediatric cancer

Maternal death (9,840 words) [view diff] exact match in snippet view article find links to article

Medicaid representatives, Maternal Mortality Review Committees and patient advocacy groups. By involving all of these major players within maternal health

Susanna van Tonder (497 words) [view diff] case mismatch in snippet view article find links to article

Sciences (The Open University) Known for Disability Rights Activism & Patient Advocacy Term 2019-present Board member of Multiple Sclérose Lëtzebuerg

Association for Molecular Pathology v. Myriad Genetics, Inc. (5,601 words) [view diff] exact match in snippet view article find links to article

suit included researchers at Columbia, NYU, Emory, and Yale, several patient advocacy groups, and several individual patients. The defendants in the suit

Specialty drugs in the United States (9,033 words) [view diff] exact match in snippet view article find links to article

drugs represented 15-20% of prescription drug reimbursement claims. Patient advocacy groups that lobby for payment for specialty drugs include the Alliance

CASI Pharmaceuticals (1,159 words) [view diff] case mismatch in snippet view article find links to article

Dresser, Rebecca (22 March 2001). When Science Offers Salvation: Patient Advocacy and Research Ethics. Oxford University Press, USA. ISBN 978-0-19-514313-3

Betsy McCaughey (6,845 words) [view diff] exact match in snippet view article find links to article

promised to fund her campaign unconditionally. McCaughey has worked on patient advocacy and healthcare policy issues since leaving office in 1999. She was

Joshua Boger (2,210 words) [view diff] exact match in snippet view article find links to article

had a contract with the Cystic Fibrosis Foundation, a nonprofit for patient advocacy and research, to create an assay for the disease. After the acquisition

Renée Fleming (11,220 words) [view diff] exact match in snippet view article find links to article

behavioral intervention development, clinical trial methodology, and patient advocacy. The goal of these conventions was to explore enhanced data collection

Atypical hemolytic uremic syndrome (4,166 words) [view diff] exact match in snippet view article find links to article

to as diarrhea-negative hemolytic-uremic syndrome (D− HUS).: 2170 Patient advocacy groups have been helping to determine research priorities. Loirat C

Edward Wild (neuroscientist) (2,433 words) [view diff] exact match in snippet view article

about Huntington's disease research, that has received awards from patient advocacy groups. He said he helped establish HDBuzz to provide tempered research

Max Samter (1,418 words) [view diff] exact match in snippet view article find links to article

quality of life, and can be life-threatening. The Samter's Society is a patient advocacy group dedicated to raising awareness for the disease Samter discovered

Bad Science (Goldacre book) (1,989 words) [view diff] exact match in snippet view article

abuses is proposed. The ethics of drug advertising and manipulation of patient advocacy groups are questioned. The role of media in misrepresenting science

Maria Luisa Escolar (3,466 words) [view diff] exact match in snippet view article find links to article

February 21, 2015. Retrieved 20 July 2020. North, Campbell (2014-12-04). "Patient advocacy crucial in fighting rare diseases | Pittsburgh Post-Gazette". Post-gazette

Desmoid Tumor Research Foundation (385 words) [view diff] case mismatch in snippet view article find links to article

Tumor Research Foundation. Retrieved August 16, 2023. "MyPART Network Patient Advocacy Partners - NCI". National Cancer Institute. August 8, 2019. Retrieved

Ambulatory glucose profile (1,987 words) [view diff] exact match in snippet view article find links to article

convened experts from academic centers in research, clinical care and patient advocacy to form a consensus on utilization of continuous glucose monitoring

MS Australia (2,112 words) [view diff] case mismatch in snippet view article find links to article

following alliances: Neurological Alliance Australia (NAA) Australian Patient Advocacy Alliance (APAA) Accessible Product Design Alliance Assistive Technology

Pheochromocytoma (16,172 words) [view diff] exact match in snippet view article find links to article

medical television dramas. Additionally, there is a strong online patient advocacy community that works to connect patients with rare diseases and allows

Susan Kennedy (11,850 words) [view diff] case mismatch in snippet view article find links to article

meets Jim Dolan at the hospital and she asks him to talk about the Patient Advocacy Program for a news article. Jim reveals that he has cancer and Susan

List of Neighbours characters (2010) (9,345 words) [view diff] case mismatch in snippet view article

few days later, Susan meets up with Jim to talk about the hospital's Patient Advocacy Program for a newspaper article. Jim tells her that he originally went

Sepsis Alliance (1,829 words) [view diff] exact match in snippet view article find links to article

system has been infected. It could be sepsis." Sepsis Alliance is a patient advocacy non-profit organization funded by contributions from individual donors

Cartwright Inquiry (5,179 words) [view diff] exact match in snippet view article find links to article

becoming New Zealand’s first patient advocate. The recommendation for patient advocacy has since been applied generally with a free nationwide health and

NGLY1 (2,886 words) [view diff] exact match in snippet view article find links to article

been reported in the literature and over 100 have been identified by patient advocacy groups. One cerebral visual impairment (CVI) patient also had a mutation

Mary Starke Harper (1,775 words) [view diff] exact match in snippet view article find links to article

awarded Harper the Surgeon General's Medal of Honor twice for her patient advocacy. In 1966, Harper was inducted into Chi Eta Phi Sorority and recognized

Controversies related to ME/CFS (6,700 words) [view diff] exact match in snippet view article find links to article

to other public health emergencies. The director of a U.S. national patient advocacy group charged the CDC had a bias against studying the disease. In response

Lymphangioleiomyomatosis (11,094 words) [view diff] exact match in snippet view article find links to article

Foundation was founded in 1995 as a grassroots organization to provide patient advocacy and research funding. Today, the LAM Foundation provides support and

Lillie Shockney (2,775 words) [view diff] exact match in snippet view article find links to article

She managed programs for quality-of-care, patient education, and patient advocacy, as well as the center's survivor volunteers, community outreach, and

The San Francisco model of AIDS care (3,607 words) [view diff] exact match in snippet view article find links to article

patients as humans—not as helpless victims. Priority was now given to patient advocacy, care, and education rather than on the sole concern of avoiding death

Leslie Bernstein (1,048 words) [view diff] exact match in snippet view article find links to article

closely with the National Breast Cancer Coalition as a proponent for patient advocacy. Her additional support of the NBCC included joining them in testifying

Newborn Screening Saves Lives Act of 2007 (1,823 words) [view diff] exact match in snippet view article find links to article

legislation has received strong support from the medical community, and patient advocacy groups, there has been continued opposition to its mandates. Most notably

Facioscapulohumeral muscular dystrophy (16,335 words) [view diff] exact match in snippet view article find links to article

1002/mus.26088. PMC 6066464. PMID 29381807. World FSHD Alliance: FSHD patient advocacy organizations across the world list of clinical trials for FSHD, Clinicaltrials

The Cancer Genome Atlas (7,468 words) [view diff] exact match in snippet view article find links to article

study rare cancers, which was enabled with support from patients, patient advocacy groups, and doctors. Starting in 2011, TCGA began holding Annual Scientific

List of statutory instruments of the United Kingdom, 2003 (33,322 words) [view diff] case mismatch in snippet view article find links to article

(S.I. 2003 No. 2041) The Mental Health (Correspondence of Patients, Patient Advocacy and Liaison Services) Regulations 2003 (S.I. 2003 No. 2042) The Protection

Supplier-induced demand (6,390 words) [view diff] case mismatch in snippet view article find links to article

1136/bmj.2.5704.286. PMC 1700443. PMID 5420179. "A Doctor's Duty to Patient Advocacy Blog". "Congress of the United States. (2008). Budget options. Vol

Native Americans and reservation inequality (8,003 words) [view diff] exact match in snippet view article find links to article

discrimination in care, lower Native American poverty rates, and increase patient advocacy among physicians. In 2018, the AAMC reported that there American Indian

Patricia Deegan (6,579 words) [view diff] case mismatch in snippet view article find links to article

experience and empirical evidence; and A History of Consumer/Survivor/Ex-patient Advocacy. Wyoming Statewide Consumer Conference, Casper Wyoming, September 8

Total posterior spine system (1,588 words) [view diff] case mismatch in snippet view article find links to article

TOPS™ System (Report). clinicaltrials.gov. "SpineFirst Leader Promotes Patient Advocacy and State-of-the-Art Technologies at 2022 Spine Summit". Atrium Health

Luckie Strike (2,047 words) [view diff] exact match in snippet view article find links to article

diagnosed with a malignant brain tumor in 2008, Salmi shifted her focus to patient advocacy. She became a researcher affiliated with Harvard Medical School, specializing

Rigid spine syndrome (2,085 words) [view diff] exact match in snippet view article find links to article

Collaborative research efforts among healthcare providers, researchers, and patient advocacy groups are essential for advancing our understanding of rigid spine

Tissa Wijeratne (2,585 words) [view diff] exact match in snippet view article find links to article

in medical practice, education or research, preventative health or patient advocacy. He became the first Sri Lankan neurologist to be awarded the Medal

Deepak Hegde (3,116 words) [view diff] no match in snippet view article find links to article

6, 2014). "Lobbying sways NIH grants - Pressure on lawmakers from patient-advocacy groups has shaped agency spending on rare-disease research" (PDF).

2023 King's Birthday Honours (Australia) (15,353 words) [view diff] exact match in snippet view article

The late Nicole Jane Cooper – For service to community health and patient advocacy. Dr Diana Elizabeth Coote – For service to medicine. Elizabeth Bothwell